The Nuffield Council on Bioethics recently closed its open consultation on ‘the linking and use of biological and health data’.  This consultation was part of their Working Party’s evidence gathering on the ethical issues raised by the linking and use of biological and health data. The Mason Institute’s Executive Committee response to the consultation recognises the importance of research using biological and health data, and the equal importance of adequately addressing the challenges around conducting such research through the application of sensitive and robust ethical and legal frameworks that continue to respect individual rights and interests with respect to personal data.

The Mason Institute’s response to the open consultation may be downloaded here: Response to Nuffield Council Mason Institute.docx.

Mason Institute Executive’s Response to the Nuffield Council on Bioethics open consultation ‘the linking and use of biological and health data’