A recent article by Graeme Laurie and Leslie Stevens has been published in the Journal of Law and Society. “Developing a Public Interest Mandate for the Governance and Use of Administrative Data in the United Kingdom” addresses the legal and ethical uncertainties surrounding the use of administrative data for research.
Drawing upon best practices developed by Laurie and Stevens in previous data initiatives and engagement with research communities, the article suggests a problematic organizational culture as the most significant barrier to proportionate and good governance of administrative data, and offers a novel means for data custodians to identify key considerations related to sector-specific practices.
With the multiple demands of academic life, do you have trouble making time for your writing?
Would you welcome support in warding off the mighty distractor that is the Internet?
Writing is hard work and is often relegated to the bottom of our to-do list. The Mason Institute (MI) organises a fortnightly writing retreat modelled on the Institute for Academic Development’s writing boot camps: a day a writing, away from wifi and phones, and organised around dedicated writing blocks and breaks.
Research by the Mason Institute conducted as part of work for the Scottish Health Informatics Programme (SHIP) and the Farr Institute on robust governance of data sharing practices has been widely endorsed and supported by a new report by the Irish Health Research Board. The new report outlines the infrastructure and services needed in Ireland to allow safe access, storing, sharing, and linking data for research.
The College of Arts, Humanities and Social Science (CAHSS) at the University of Edinburgh promotes research that is “changing our world and shaping a better future.” MI’s Shawn Harmon recently spoke with the CAHSS team to discuss the impact of his work on health research regulation in Argentina.
The Mason Institute (MI) is pleased to have awarded six scholarships to help outstanding international students attend the 13th World Congress of the International Association of Bioethics (IAB 2016).
Ahead of this exciting event, taking place in Edinburgh on 14-17 June, MI asked its scholarship recipients to share what they hoped to get out of their attendance at IAB 2016, as well as a bioethics-related journal article that has influenced their work.
The Mason Institute is pleased to announce the 2015-16 Maclagan Prize Scholarship for a student already pursuing or wishing to pursue a PhD at the University of Edinburgh. The topic of the PhD research project must be within the broad areas and themes of the Mason Institute – that is, ethical, legal, social and political implications and impacts of new technologies and practices in medicine and the life sciences, which are likely to have an ever greater and deeper impact on the everyday lives of individuals, groups and societies. Please note this can be in ANY related discipline – not solely law.
The Mason Institute is pleased to announce a new scholarship for postgraduate students interested in attending the 13th World Congress of the International Association of Bioethics (IAB 2016), to be held in Edinburgh in June 2016.
MI is committed to the capacity building of students wishing to develop their knowledge, presentation, research and enquiry skills in relation to developments at the interface between medicine, life sciences, ethics and the law. IAB 2016 will provide an excellent opportunity for postgraduate students to progress their research, engage with cutting-edge bioethics issues, and explore new ways of contributing to the wider community.
The Royal Society of Edinburgh is pleased to invite proposals for two literature reviews in relation to this project: “Health, Happiness & Wellbeing – Transitions to Successful Adulthood” being funded by the Caledonian Research Fund.
The Liminal Spaces team discuss their recent symposium on liminality and health research regulation in the United Kingdom with AllegraLab.
Biomedicine and the life sciences continue to rearrange the relationship between culture and biology, problematizing what it means to be a person, and introducing uncertainty and instability to individual and public life.
Leslie Stevens and Nayha Sethi have been awarded University of Edinburgh College of Humanities and Social Science Knowledge Exchange funding for a stakeholder workshop on “Delivering Interoperability in Cross-Sectoral Data Sharing for the Public Good.” The need to develop interoperable governance mechanisms that can facilitate data sharing across different sectors of public life is urgent and this project will explore what needs to happen to make this possible.