The Great Medico-Legal Debate 2017 The right to know and the duty to tell: ‘Should there be a right to be informed about a family member’s genetic disorder?’

The Great Medico-Legal Debate 2017 When health care professionals  receive a patient’s predictive genetic information should they owe a legal duty to disclose this information to genetic relatives? The Mason Institute warmly invites you to attend the fourth annual Great Medico-Legal

Irish Health Research Board Report Endorses MI Work

Irish Health Research Board Report Endorses MI Work

Research by the Mason Institute conducted as part of work for the Scottish Health Informatics Programme (SHIP) and the Farr Institute on robust governance of data sharing practices has been widely endorsed and supported by a new report by the Irish Health Research Board. The new report outlines the infrastructure and services needed in Ireland to allow safe access, storing, sharing, and linking data for research.