The Great Medico-Legal Debate 2017 The right to know and the duty to tell: ‘Should there be a right to be informed about a family member’s genetic disorder?’

The Great Medico-Legal Debate 2017 When health care professionals  receive a patient’s predictive genetic information should they owe a legal duty to disclose this information to genetic relatives? The Mason Institute warmly invites you to attend the fourth annual Great Medico-Legal

New Article on the Use of Administrative Data

New Article on the Use of Administrative Data

A recent article by Graeme Laurie and Leslie Stevens has been published in the Journal of Law and Society. “Developing a Public Interest Mandate for the Governance and Use of Administrative Data in the United Kingdom” addresses the legal and ethical uncertainties surrounding the use of administrative data for research.

Drawing upon best practices developed by Laurie and Stevens in previous data initiatives and engagement with research communities, the article suggests a problematic organizational culture as the most significant barrier to proportionate and good governance of administrative data, and offers a novel means for data custodians to identify key considerations related to sector-specific practices.

Mason Institute Writing Retreats

Mason Institute Writing Retreats

Are you facing writer’s block?

With the multiple demands of academic life, do you have trouble making time for your writing?

Would you welcome support in warding off the mighty distractor that is the Internet?

Writing is hard work and is often relegated to the bottom of our to-do list. The Mason Institute (MI) organises a fortnightly writing retreat modelled on the Institute for Academic Development’s writing boot camps: a day a writing, away from wifi and phones, and organised around dedicated writing blocks and breaks.

Irish Health Research Board Report Endorses MI Work

Irish Health Research Board Report Endorses MI Work

Research by the Mason Institute conducted as part of work for the Scottish Health Informatics Programme (SHIP) and the Farr Institute on robust governance of data sharing practices has been widely endorsed and supported by a new report by the Irish Health Research Board. The new report outlines the infrastructure and services needed in Ireland to allow safe access, storing, sharing, and linking data for research.

Mason Institute IAB 2016 Scholarship Awardees

Mason Institute IAB 2016 Scholarship Awardees

The Mason Institute (MI) is pleased to have awarded six scholarships to help outstanding international students attend the 13th World Congress of the International Association of Bioethics (IAB 2016).

Ahead of this exciting event, taking place in Edinburgh on 14-17 June, MI asked its scholarship recipients to share what they hoped to get out of their attendance at IAB 2016, as well as a bioethics-related journal article that has influenced their work.