Funder(s): Wellcome Trust, Medical Research Council, Economic and Social Research Council
MI Researcher(s): Graeme Laurie, Nayha Sethi

Description:
Graeme Laurie and Nayha Sethi lead the information governance research stream of the ground-breaking ScottisH Informatics Programme (SHIP). This £3 million collaboration involved researchers around Scotland in partnership with NHS Scotland. The objective of the programme was to build better systems for the safe, efficient and productive use of health data for research purposes. Our futures and those of our children depend on high-quality, ethically sound research and Scotland has some of the best datasets in the world. This programme brought together an interdisciplinary team and the custodians of health data in Scotland to construct a system to make Scotland second-to-none in the field of health-related research.

Outcomes:
Professor Graeme Laurie and Nayha Sethi have produced the Good Governance Framework (GGF) for SHIP – setting down standards according to which the initiative will operate and people’s privacy will be protected – and this is now being adopted by key stakeholders in the field.

Their Good Governance Framework is also the basis for a current Scottish Government consultation on establishing a National Data Linkage Centre.